Rare Disease Day

Congratulations to Rare Disease New Zealand on publishing the new Parent and Caregiver Guide, 'Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New Zealand'.

This guide has been developed by Rare Disorders NZ to help parents and caregivers navigate the path in caring for a child with a rare disorder in Aotearoa New Zealand.

Rare Disorders NZ’s patron Her Excellency, The Right Honorable Dame Cindy Kiro, hosted a special event today at Government House, to celebrate this occasion with invited families and members of the rare disorder community.