Rare Disease Day
Tue Feb. 28th 2023
28th February Rare Disease Day.
Congratulations to Rare Disease New Zealand on publishing the new Parent and Caregiver Guide, 'Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New Zealand'.
This guide has been developed by Rare Disorders NZ to help parents and caregivers navigate the path in caring for a child with a rare disorder in Aotearoa New Zealand.
Rare Disorders NZ’s patron Her Excellency, The Right Honorable Dame Cindy Kiro, hosted a special event today at Government House, to celebrate this occasion with invited families and members of the rare disorder community.
IDFNZ is proud to be part of this community.
To download this Guide please follow the link below