Wishlist projects
We always have special projects on our wishlist and the Foundation is always keen for support to get these exciting ventures off the ground! Because we rely entirely on the support of others and our own fundraising efforts, sometimes these projects can take time, but the benefits are always huge!
Patient Centre and Patient Accommodation
Our vision - A Community Support Centre for PID and Liver Transplant Patients
This is a big one! The Foundation is aware of the many challenges families undergoing transplant face. Lengthy admissions to hospital pre-transplant, the trauma and stress of this major, life saving surgery and long periods of post-transplant recuperation in hospital.
The Foundation commenced fundraising to build the IDFNZ Patient Support Centre and adjacent Patient Accommodation early this year. This project may take many years to reach the full target, but it is our aim that its progress be staged, and that we eventually provide between 2 and 5 separate 'homes' to house our member families for this post-transplant transition phase.
Currently, for those living outside the
immediate Auckland region, patients discharged from the hospital must
remain in the area for some time to attend weekly clinics, ensuring all
is stable before they finally return home (South Island, Wellington
etc).
Medical Devices and equipment for Home treatment
Our patient members spend a lot of time visiting hospital clinics and are frequently admitted to hospital. It is our aim to support home treatment wherever possible to improve quality of life and reduce the upheaval of additional hospital trips. IDFNZ assists by providing patients with a range of medical devices and equipment that helps make this possible for members. Depending on specific needs, this can include Adrenaline devices, non-touch thermometers, SCIG pumps, medicine storage fridges for immunoglobulin supplies, IV poles, home delivery of hospital supplies, first aid kits, St Johns Ambulance membership, pain relief devices and other specialised medical items that make a positive difference to individual members.
