Advocacy support

The Foundation offers free membership to Patient members and their families. Support can help families under stress deal more effectively in accessing information and services related to their medical situation. Over the years we have helped many families with situations involving Hospital/ medical staff, employers, government agencies, schools, etc.


It sometimes helps to have someone to call on for independent help or assistance when processing a lot of new information, trying to find answers or simply running out of energy due to the stress and shock of these illnesses.

If we cannot help directly we will do our best to find answers for you and put you in touch with suitable specialists.