We always have special projects on our wishlist and the Foundation is always keen for support to get these exciting ventures off the ground! Because we rely entirely on the support of others and our own fundraising efforts, sometimes these projects can take time, but the benefits are always huge!
Patient Centre and Patient Accommodation
Our vision - A Community Support Centre for PID and Liver Transplant Patients
This is a big one! The Foundation is aware of the many challenges families undergoing transplant face. Lengthy admissions to hospital pre-transplant, the trauma and stress of this major, life saving surgery and long periods of post-transplant recuperation in hospital.
The Foundation commenced fundraising to build the IDFNZ Patient Support Centre and adjacent Patient Accommodation early this year. This project may take many years to reach the full target, but it is our aim that its progress be staged, and that we eventually provide between 2 and 5 separate 'homes' to house our member families for this post-transplant transition phase.
Currently, for those living outside the immediate Auckland region, patients discharged from the hospital must remain in the area for some time to attend weekly clinics, ensuring all is stable before they finally return home (South Island, Wellington etc).
Sub-Cutaneous Immunoglobulin (SCIG) Pumps Project
Our patient members affected by Primary Immune Deficiency disorders are affected by faulty immune systems and are unable to make their own anti bodies. Collectively, they represent the main recipients of donated human plasma, undergoing routine intravenous treatment with immunoglobulin (plasma) infusions at hospital day clinics every 3-4 weeks. Without the immunoglobulin treatment these patients would be unable to fight infections and their lives would be constantly at risk.
SCIG pumps deliver the immunoglobulin into the subcutaneous fat (under the skin) rather than by vein - and thus allow this life saving treatment to be undertaken at home by the patient or caregiver. By having their own pumps, patients are given the freedom to administer the immunoglobulin at their convenience, meaning a lesser number of long and arduous visits to the hospital each month and more quality time at home with family.
Our aim is to provide one of these pumps to each of our PID patients requiring these, and are delighted to announce that we are almost halfway there after an extremely generous donation from the Freemasons of New Zealand. (see story below).