Meet the Board
The Foundation is an Incorporated Society and Registered Charity; it is governed by a volunteer Board comprising of representatives from our membership that include - adult patients, parents of child members, and medical panel representatives.
General Manager - Janet Simons
Current Board members are:
- Adriaan Bosch (Chair)
- Nick Metson (Vice-Chair)
- David Hilliar (Treasurer)
- Vicki Tattley (Secretary)
- Judith Dickson
- Laura Hannah
- Dr Miriam Hurst
- Caroline Saunders
- Julian Ng
- Michele Kay-Sharman
- Dr Annaliesse Blincoe
The Foundation is an Incorporated Society and Registered Charity; it is governed by a Board of volunteer members.
Our current auditor is Bruce Urquhart, 1A Estuary Views, Auckland.
Lawyer Duncan Cotterill Lawyers, PO Box 10-376, Wellington
Legal Entity: Incorporated Society Registered Charity CC24570
Tax status: IRD Number: 55-267-340; GST Registered.
Tax exempt under sections 61(25), 56A and 147 of the Income Tax Act 1976.