A Journey Through PID - Living with Chronic Illness

Dr Chris Budd, a clinical psychologist, discusses the importance of psychological support for young people and their families facing complex and chronic illnesses, particularly those undergoing solid organ transplants. He emphasizes the unique challenges faced during the transition from pediatric to adult services, highlighting issues like non-compliance, cognitive deficits, and complex pain. Dr Budd advocates for a holistic healthcare model that addresses mental, spiritual, family, and physical well-being, recognizing the impact of chronic illness on families, including stress, trauma, and feelings of powerlessness. The discussion touches on the significance of understanding culturally bound experiences of grief and empowering families in medical decision-making. Dr Budd also introduces the PACE model (playfulness, acceptance, curiosity, and empathy) and stresses recognizing cognitive biases and promoting self-care for healthcare professionals and families.