A Journey Through PID - IDFNZ Patient Stories - Matt

A Musician's Journey Through Diagnosis and Treatment

IDFNZ member Matt Hoyles is a musician diagnosed with CVID in 2021. Matt shares his journey of navigating life with an immune deficiency. He recounts struggling with misdiagnosis and symptom-focused treatments in Canada before returning to New Zealand, where he finally received a diagnosis. Matt describes the transformative impact of IVIG treatment on his energy and mental health, enabling him to resume activities like international travel and mountain climbing. He also discusses the challenges of living with CVID during a pandemic and his transition to subcutaneous immunoglobulin therapy, which offered greater control and freedom. Matt highlights the support he received from his healthcare professionals and the IDFNZ patient support group and how he adapted his music career to accommodate his health needs.