Yellow Balloons for Liver Disease on Rare Disease Day 28th February
KIDS Foundation families, medical staff and supporters met in Auckland Domain on Friday 28th February to mark Rare Disease Day. A talented St Johns yellow eyed penguin called Primo - helped us release yellow balloons to raise awareness of the early warning signs of paediatric liver disease.
A fun way of communicating a very important message - painting the sky yellow to mark the day !
The balloons were symbolic of our brave liver children - their courage and tenacity.
As we watched the balloons - we remembered fondly,our precious children sadly lost to liver disease, gave thanks for those that have overcome the disease, and gratefully acknowledged the precious gift of life offered by liver donors.
thanks to all who participated!
Highlights were captured by TVNZ http://tvnz.co.nz/national-news/parents-warned-liver-disease-in-newborns-video-5854604
it is wonderful to see this message being broadcast Nationally with KIDS Foundation families sharing their experiences: