aJune 24, 2014
c0 comments
fFoundation events
PID Family Conference 2014
PID Family Conference 2014
We would like to thank Dr Shannon Brothers and
Dr Anthony Jordan for helping to organise a most enjoyable and successful family conference as part of our New Zealand PI Awareness week programme.
The conference was made possible by an education grant from CSL Behring, and grants from COGS and the Southern Trust.
Held at Butterfly Creek in Auckland, It was a great opportunity for PID families to meet and network with others facing similar health challenges.
The talks were interesting and informative, covering a variety of relevant topics. Many thanks to our medical professional speakers who gave up precious time to attend the event and share their expertise – Dr Penny Fitzharris, Dr Brian Broom, Dr Nyree Cole, Dr Khan Preece, Dr Anthony Jordan, Simone Stephens and Raewyn Fisher. Thanks also to our patient speakers for sharing their PID journey – Adriaan Bosch, Laura Hannah and Tineke Grindlay.
Slides of many of the talks are now available below .
Program:
Welcome | Janet Simons, IDFNZ |
PID & immune system overview | Dr Kahn Preece |
Understanding immune testing | Dr Anthony Jordan |
Dealing with medical uncertainty | Dr Brian Broom |
SCIG updates | Simone Stephens |
CVID update | Dr Penny Fitzharris |
BMT for PIDs | Dr Nyree Cole |
BMT for PIDs - BMT registers & tissue typing process | Raewyn Fisher |
BMT Experience from a Patient perspective | Tineke Grindlay |
SCID new born screening | Dr Kahn Preece |
A sense of community | Laura Hannah and Adriaan Bosch IDFNZ |
Question time | Panel |
Close of Talks | Vicki Tattley Chairman IDFNZ |
“Crocktails” and Butterflies – social hour |


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