Archive: 2020
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PI WEEK 2020
March 27, 2020
PI Week 2020 Changing the lives of Kiwis living with undiagnosed Primary Immune Deficiency (PID) Disorders. There are now 430 recognised types of PID; although considered “rare” in the population, they can be life threatening and cause chronic ill health for those affected. Thousands of Kiwis ...
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Meet Stella - the First Kiwi Baby diagnosed with SCID via New born testing in New Zealand
March 27, 2020
In 2018, IDFNZ Patient member Stella Oprwood became the first Kiwi baby to be diagnosed with severe combined immune deficiency through the newborn metabolic screening programme. As a result, Stella’s health condition was able to be carefully managed by doctors before she suffered serious infection; ...
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CORONAVIRUS COVID-19
Feb. 26, 2020
COVID – 19 Update for IDFNZ Patient Members ; March 24th 2020Message for all IDFNZ and KIDS Foundation members - please don't feel you are alone even though you may be isolated at home; IDFNZ support services will continue on throughout the COVID-19 situation – members ...
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IDFNZ Coping with Chronic Illness – Workshop Dr Brian Broom
Feb. 7, 2020
IDFNZ is proud to host : Coping with Chronic Illness – an Auckland Wellness Workshop lead by Dr Brian BroomEvent now closed off.On Saturday March 14th, 2020, 10.30am – 12.30.@The St Heliers Centre, 100 St Heliers Bay Rd, St Heliers, Auckland 1071“Let’s talk about the bits ...
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PI Awareness - Step out For IDFNZ Fun Run
Feb. 5, 2020
Register online now at https://www.webscorer.com/register?raceid=208786
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Hands up to support Rare Disease Day 2020
Jan. 31, 2020
Rare Disease Day 2020This year is a leap year and so it is appropriate we are celebrating Rare Disease Day on the rare date of 29th February. What is Rare? - Internationally a disease or disorder affecting less than 1 in 2000 people in the population ...
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IDFNZ PATIENT MEMBER FUNDRAISING
Jan. 23, 2020
Luke Cherry – Brave, Kind and Thoughtful It was very touching to be presented with a special gift for IDFNZ KIDS Foundation at the Christchurch Christmas event from 11-year Luke Cherry. Luke had been wanting to do something for the KIDS Foundation for quite some ...
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Team Hasbro - Amazing Christmas Gift to IDFNZ
Jan. 23, 2020
HASBRO DAY OF JOY 2019